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Thursday, 8 January 2015

New year, new life?

Hello again! Christmas is over now and so is the New Year :) So HAPPY NEW YEAR to you all. I only wish 2015 will be better then 2014, though it's not looking good at the moment. Today I had another meeting with my stoma nurse and the wound on the side of my stoma has gotten a bit bigger since the last time I saw her. Again she said, I might have a skin disease called Pyoderma Gangrenosum. This is what WIkipedia says about it:

"Pyoderma gangrenosum is a condition that causes tissue to become necrotic, causing deep ulcers that usually occur on the legs. When they occur, they can lead to chronic wounds. Ulcers usually initially look like small bug bites or papules, and they progress to larger ulcers. Though the wounds rarely lead to death, they can cause pain and scarring."

Tomorrow I'm going to see the doctor/surgeon who is going to make a decicion if I should goo to a dermatologist or if I'll just start eating cortisone for it... I've stayed away from cortisone trough out my adult life since it's the worst medication that you can give to a person with BED (binge eating disorder). So I'm really terrified about taking it for just a "small" wound on my stomach but apparently if it is Pyoderma, nothing else will help...  And I need the wound to close since that is the only way for me to get another surgery on my stoma to make it even half way decent.



I so hate my life right now. I was SO SURE that with this stupid ileostomy I wouldn't have to worry about taking medication or running to the toilet all the time... Even thought I would get rid of the pain I've been living for years with. But of course nothing is that easy for me. I still eat all the same meds as before, now I'll need to take medication I swore to my self  I'd never ever take under no circumstances AND I still need to run to the toilet all the time. Yeah, I'm not a very lucky person.

Well at least the weather is great NOT :D We had beautiful snow for Christmas but for New Years eve it was almost all gone...  Right now it's raining. But I'm sure the snow will come soon! And I so wish this wound would heal also, at least with that terrible medication so I could finally get the surgery and maybe have a bit easier time with this stoma.

And for the end, I'll show you the best Christmas present I got this year :D