Now I have started to experience a very nasty thing called pancaking. It's due to the foods I eat. When ever I eat rye bread and lots of fibers I don't get it but I've had a low fibre dies for years and years so it's hard to start eating the things I haven't been able to eat for so long time. Plus I try to keep away from too many carbs and as we all know bread is full of those. I've tried to eat a lot of vegetables (those I dare to eat) but it doesn't seem to help. Maybe pancaking can also be due to not drinking enough?
For those who are unaware of what pancaking is, it's when the stool is so thick that it gets stuck on the opening of the flange where the stoma is. This is bad as it can lead to leakage and that's bad as leakages break the skin and can cause burning and stinging sensation. I have noticed that my stoma really doesn't like this pancaking AT ALL! It starts to sting and hurt right away. But haven't figured out yet how to make it stop. So now I just eat loads of painkillers and try to manage for the whole day and night without changing the flange.
I so hope this would get easier at some point but it seems like I take step foward and two steps back. And all the stoma nurse can do is just keep telling me it will get easier... Yes, well WHEN is it going to get easier? And what if it doesn't get any easier, then what? I'm already so tired of being cooped up here in the apartment and not able to really go anywhere.
I'm also supposed to be singing in this Christmas song concert in December which will be fine I'm sure but I'm dredding the rehearsals as I either need to wake up super early to change the flange and then go, OR change the flange after the rehearsal so I get to sleep a bit longer. I always have to have 2 hours of caution time with the changing as I never know what's going to happen. 1h 50 minutes has been the longest it has taken me to change the flange so I want to reserve at least that amount of time for it. But the problem is that if I'll leave the flange on for the rehearsal I won't be able to relax at all as I'm worried it will leak. And the place I go for rehearsal has no place to change a leaking flange. Oh I SO HATE this whole thing. I just want somekind of life, that's not too much to ask...
AND there is still no snow here! I'm so hoping we'll get snow at least for Christmas :)
Yep, seems we need to learn a whole new diet, directed by our stoma.
ReplyDeleteYes, food is such a big problem for me as I need to change the things I eat all the time, it's not easy!
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